Back story very very summarised - discharged from rheumatology after being referred by physio because they had suspicions I had something systemic going on.
Rheumatology did bloods, back MRI, hand and feet X-ray, hand ultrasound - I was told no inflammation. Put on etorixcozib (which works pretty well apart from morning back stiffness which is still very much lingering).
Anyway, today I had an appointment with an opthamologist due to severe dry eyes, he then asked about my meds why I’m taking etorixcozib and said I need to speak to my GP about my dry eyes and the link with my joint pain. I said I’d already seen a rheumatologist who’d discharged me, so he said ‘what diagnosis do i have and why am I taking medication?’ He said I should understand why I am on these meds and what I’m dealing with so it can help them help me - I just explained no one has actually given me any diagnosis. Basically it felt like he was telling me off and I felt the eye appointment was not taken seriously because of the potential joint link (which I had already mentioned to other docs)
I just don’t feel like any appointment I go to I come away with a resolution or answers, they all just send me to other people who still can’t give answers. It’s just so frustrating - my GP app is next week, I really don’t know what I’m going to say?! I was going to go just about my morning back stiffness which is still going on but now I’m thinking do I mention the comments from the opthamologist or surely my GP would be thinking about this??
UK btw