This is so damn annoying to me, of course a proper diagnosis is important!! I’ve learned so much about why my body does what it does, and how to properly take care of myself too. I have my genetics consult in July (it’s online and has great reviews from other people struggling with an eds diagnosis), and will have been waiting a year and a half total for it.
I had mouth surgery over a year ago now because my gums are sliding off my teeth. One of my teeth is pushing so far forward my gum wasn’t able to heal and cover the base of my tooth all the way. I’ve already paid for the skin graft (it was like a 2in1 deal almost) but they don’t want to do it yet because it’s connective tissue they’ll be taking and grafting, and that makes things much more complicated! I’ve see so many doctors and I tell them all I suspect I have a connective tissue disorder and they all give me a “so what?” So EVERYTHING!!!! I hurt all the time and am exhausted. IM TIRED OF THIS GRANDPA