Honestly being failed by the medical system, Neurology rejecting a repeat EMG/Clinical, while i’m sitting here suffering from shortness of breath and weakness, My Doctor happily prescribes tablets but won’t do anything for me testing wise. I’m lost and can’t afford a Private EMG.
I’m praying this is Myasthenia Gravis although i don’t have the classic ptosis although you can have it without ptosis.
I feel so alone while going through this, watching and feeling my body decay right through my eyes, every twitch is a reminder that i’m fucked. every step on my left leg is a reminder that i’m fucked. every shortness of breath is a reminder that i’m fucked. scrolling through my phone and feeling my boney tendon ache. random muscle aches. less muscle padding on my achy tender knees. less muscle padding when sitting down on hard surfaces. walking downstairs and my knees are constantly shaking. neck heaviness. arm/leg atrophy.
Does anyone here experience them, currently on 1 year 6 months of symptoms gradually getting worse. it’s like random tendon/nerve/bone pain/muscle pain