u/Bloomwithcourage

▲ 6 r/AddisonsDisease+1 crossposts

What to do if steroid you are taking is not responding well to your body and cortisol is super low?

Hi, so I've been taking prednisone and am tapering off of it for another medical condition. I mentioned to my endocrinologist that I've been having bad side effects but she said to continue tapering off prednisone for now. I just got labs done and my cortisol and ACTH are super low even with taking a high dose of prednisone. I'm not sure what to do in this case as my appointment with my doctor is a couple of days from now and I feel horrible. On top of all of this, I'm fighting an infection and taking an antibiotic. I don't know if it is okay to take hydrocortisone on top of prednisone to see if that helps the low cortisol symptoms.
It's no wonder I've been feeling so bad 😭

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u/Bloomwithcourage — 2 days ago

How do you know it’s time to go to the hospital when you have an infection with AI?

Hi I’m taking prednisone and have SAI. I recently got diagnosed with a uti and got an antibiotic but am not feeling better. It’s day two today but my symptoms are a bit worse, I have some back pain now, my bladder hurts more, I have nausea, my temp is going up, and I just feel worse over all. I’m trying to figure out what I can do because if I can help it I don’t want to have to go to the ER 😩. I’m not sure if it would be a good idea to take some hydrocortisone to see if that helps me too? Any advice is appreciated.

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u/Bloomwithcourage — 3 days ago

How are you supposed to tell if you are tolerating prednisone better than if you were taking hydrocortisone? I've been on prednisone since March and I have been having so many side effects and it all feels like too much. I did not have this many side effects on hydrocortisone. It’s been so overwhelming for me that I’m tempted to just stop taking the prednisone but I know that’s not a good idea. I’m not sure what else I can do to help.😭

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u/Bloomwithcourage — 13 days ago

I recently switched to prednisone instead of hydrocortisone and am wondering how stress dosing works for prednisone. Like if you were to be sick and throwing up how do you stress dose while taking prednisone? I'm currently taking 50mg.

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u/Bloomwithcourage — 19 days ago