Is it just me, or does it keep spreading for anyone else?
Let me start off by saying I'm not trying to scare anyone nor am I looking for advice, and I'm aware that as far as I know it's not considered a progressive condition. I just want to know if other people's experiences line up with mine. If anyone's concerned about me taking information from here too seriously in the medical sense regardless, please know that I have a neurologist and I plan on asking for more information about this at my next visit! This is purely that I want anecdotal information from other people with the condition since I don't really talk to other people with fibro that often.
I developed Fibro at 15, (not diagnosed until 20, but that's where I remember the pain starting) and I feel like it's been slowly spreading to impact different parts of my body more and more since then. Not constantly, but like, the 'range' of symptoms it causes me keeps expanding every couple of years.
Like most recently, I'm 24 now and in past months I've started getting clusters of migraines. I've noticed immense neck tension alongside these and it's starting to get painful in the same way my other flareup-prone spots do. (As in, my neck's hurting, even when my head isn't) It's often where the migraines start. Neuro confirmed that there's a really bad trigger point at the base of my neck last summer which I'm getting nerve blockers in soon.
I'm kind of frustrated because I don't feel like my experience lines up with how I see it described when you, like, do a base search of information or see the condition talked about. Am I missing something? My neuro says fibro can cause abnormally high amounts of muscle tension and that just feels like it gets worse in random areas for no reason in particular as time passes regardless of stress levels.
I don't feel hopeless about it or anything. It sucks. I hate it. I don't like that I feel like I'm deteriorating, but I'm a really resilient person and I've adapted and found things that help before and I'll do it again. It's all ups and downs. I guess I'm just curious if it's happened like this for other people. Fibro isn't the only condition I have, but I don't have anything else that would explain this to my knowledge. Sorry if this is a stupid question, like I said, I don't talk to others about this much! I'm also aware I could do more digging, but I'd really enjoy conversing about it with people if I end up having the energy when/if anybody replies with their own experiences.
Sorry in advance if I don't respond to replies quickly/forget, also! I'm not doing great at the moment, so it's kind of a hit or miss whether I have the bandwidth or remember to check on any given day!