▲ 5 r/hypermobileEDS
Does anyone have problems with their bladder and if so, would you mind sharing what/how? If you only feel comfortable talking privately, my DM’s are open 🤍
One of my doctors thinks I might have interstitial cystitis (IC) and wants me to try medication for it but I recently learned that hEDS can affect your bladder as well, which I didn’t know, so I would like to know how people with hEDS with bladder problems suffer before I start a treatment for IC.
I get that this is a TMI topic and can be embarrassing but I think that we should talk about it more, even if it’s privately, so those of us who struggle feel less alone. If you don’t want to answer here but wouldn’t mind sending a private message, please do before I maybe start a wrong treatment… 🙏🏼
u/BlondePowerpuffGirll — 4 days ago