Any advice for someone with a CHD identified in pregnancy?
I am 22 weeks pregnant with Twins. Found out last week that Twin A has multiple heart conditions (Double outlet right ventricle [DORV], Ventricular septal defect [VSD] and Transposition of the great arteries [TGA]). As he also is measuring short on his femur and humerus bones they think he will have a genetic condition such as downs syndrome (but we have decided not to have an amniocentesis so won't know until he is born).
We know he will need at least one operation at a few months old, possible one sooner which we won't know until later on/once he is born. Just wanted to know if anyone else has been through similar? If so, how did you cope with the anxiety and uncertainty?
u/Blodyn91 — 2 days ago