▲ 14 r/ehlersdanlos
I’m curious about others experiences with wheelchair use in the EDS community.
I’m an ambulatory wheelchair user myself, and my main reason is severe dysautonomia, especially blood pooling. I can only stand or walk for a few seconds, and can only be sitting with my legs down for a very limited amount of time. I do have pain and weakness, but those aren’t the primary drivers for me.
For those of you who use a wheelchair, full time or part time, what are the main reasons you need it? Is dysautonomia/blood pooling a big factor for you too, or is it more related to pain, joint instability, fatigue, or something else?
u/Bitter-North-7480 — 9 days ago