u/BitKey69

(I wrote this with a translator to make it faster, sorry)

First, I was diagnosed about a year ago, but my symptoms started two or three years ago.

Since my diagnosis, I've been taking 10 mg of thiamazole, and I've felt better since then, although some days I still experienced symptoms. But about a month ago, I started feeling like I did when I wasn't taking thiamazole.

Now I'm experiencing the symptoms again, especially hot flashes, anxiety, insomnia (because I get very hot at night), and I feel clumsy. But now "new" symptoms have appeared: joint pain, dry eyes and mouth in the morning, and a goiter, which appeared about two weeks ago. The day it appeared, I felt like I had a hot steak on my neck radiating heat internally with every heartbeat, in addition to sweating profusely and feeling very nervous.

Somehow managed to sleep that day, and although I didn't feel any heat or symptoms the next morning, the goiter remained. It didn't go away and is still visible, though not very much, on the right side of my neck. I haven't felt this again until now, but out of concern, I decided to get some tests done. The strangest thing is that my TSH was high, but my T3 and T4 were relatively normal. So I don't know what to do. I'll see a private doctor soon because my insurance didn't give me an appointment until June, so I don't know what to think.

I'm still only sleeping 3 or 4 hours a night, the heat and my thoughts won't let me. I'm afraid they'll stop or reduce my thiamazole because my TSH was high, but that doesn't necessarily mean I have hypothyroidism, right? Because my symptoms are those of hyperthyroidism. I'm worried. Has anyone else experienced something similar?

I also thought that maybe I'm "cured," but that would mean I should stop having symptoms, or at least have them but with less intensity, right? But what do I do if I still have them? 😭

u/BitKey69 — 7 days ago