u/Big_Efficiency4802

I posted on the kidney stone Reddit but I didn’t really get much other than to drink and some critisim on not typing in paragraphs so bear with me sorry.

When I was 7/8 I had a really bad dose of HSP I was in hospital for over a month and it left me with scarring to my kidneys and stage 2 CKD but for years it never really affected me because I was always told if do what I’m supposed to it won’t progress, after getting HSP my kidneys were like a stone mine and I have had 38 stones since and these cause me a lot of pain doctors are always worried that these will scar my kidneys more because one of the stones I got checked a while back was À struvite
Stone which can cause scarring but thankfully it didn’t. The urologists always say they’re worried about my storms but they never act on it.

I have struggled to pee my whole life and I take alpha blockers every day in order to pee and I drink loads of water and I do what I’m told and I don’t take ibuprofen I just take paracetamol suppositories.

My nephrologist is quite mean I’ve been experiencing pain every single day to the point I can’t move and I can’t lie on my back so I have to sit up to sleep and sometimes it feels like my organs are gonna drop out even tho I know they won’t, I’ve been using heat pads etc and this has been happening months and sorry for tmi but I’ve always had regular periods but they’ve become irregular like it didn’t come for 7 weeks then it came really heavy for 2 weeks then it came back 2 weeks later, but my GP just says all this is caused by my anaemia.

Anyways back to my point my nephrologist at my last appointment told me if I don’t pee more and drink more I’ll end up on stage 3 he was very mean he yelled it at me. I drink all the time if I don’t my mum gets super mad so of course I drink but everybody just blames me, when I’m crying in pain my parents just yell at me for not drinking enough and my side always gets sorer when I’m upset. I just can’t pee I never feel the urge I pee 1-2 times À day and they’re long pees, I just can’t pee sometimes I’m too scared to because my pees are always too painful.

Anyways does anyone have any advice I’m very scared, and I hope everyone here is feeling better soon and gets what they need, I’ll be praying for everyone 🙏 it makes me so sad to know some people in this world are so sick it’s not fair on you guys. Sorry if this was in the wrong Reddit and if this should have been posted in the kidney stone one.

Hi everyone I have been on here before but I think I deleted my post because ngl Reddit really scares me idk why and everybody just came at me when I said I only pee 1-2 times a day but I can’t help it I do drink LOADS, I just never feel the urge to go and I’m always too scared to pee because it always hurts sooo much and I’m always scared I’m gonna pee out a stone because sometimes I just get the heavy feeling that my stomach is gonna fall out then I look down and see a stone. Anyways I’ve had more kidney stones that I can count and I had my first one when I was like 7 or 8 I think it was and they’ve just been happening ever since in both kidneys. But the pain has gotten so bad recently I’ve missed so much school because they’re are weeks I cannot even go to school I’m in so much pain, and because of my age doctors don’t really give me any good medicine just alpha blockers and suppositories which I HATE and I get cocodomol but it’s such a low dose I may aswell not even take it at all. Anyways I wear heat pads every night and sometimes I have to sleep sitting up because I’m in too much pain to lie down and it lasts weeks on end especially when I am nervous or stressed and last year I was in the hospital and missed one of my exams due to kidney stones I really don’t want that happening this year because of my exams. No doctor will help me because of my age and they all just ignore my pain and just tell me it will pass but it doesn’t really feel like it. I know I have 5 small kidney stones in my left right now and I recently passed one. Anyways I know kidney stone pain it makes me vomit and faint and when my stone is passing I feel like my stomach is going to fall out. But recently I am in so much pain so often like every 2 weeks at this point for days on end and it’s in my side but my kidney stones always feel like a fat person lying on me and then like short stabs but this time it kinda feels different now like my internal organs are gonna fall out does anyone else get this? And sorry for tmi but this pain is messing with my periods my last period was 7 weeks ago and I just got my period today and it’s so much stronger and sorer than normal I’ve bled through basically everything and normally I only get light blood but maybe I’m just getting older but last year I had really regular periods so it’s weird it would take so long for it to come back and then time before it came and then came back 2 weeks later and lasted 9 days when mine usually only last 4. How do I get rid of this pain bscause nobody will help me or take me seriously, and I do drink loads and I drink lemon water and I’ve even been charmed but the charm didn’t work and I’ve prayed but the prayers didn’t work I just want the pain to stop coming back and just go back to how it used to be when I just got a kidney stone every like month or so and it was like 4 days of pain pee it out and go back to normal for a little while