u/BigAspect6066

So I’m in the uk and I swear since March I’ve just been flaring. I have CFS, POTS, suspected MCAS and a host of other chronic stuff.

It seems that my system is even more in fight/flight than usual and I had a crash a few weeks back as I’d had adrenaline for weeks so my body was just exhausted. My cardiologist does suspect MCAS so I’m wondering if it’s histamine related with the pollen, but my fatigue has increased (bedbound anyway but even more out of it), huge amounts of brain fog, flushing more after most foods and bizarrely this morning my tongue started tingling and going numb! I didn’t eat anything new and it was as I was eating my breakfast which is the same foods as normal.

My chest has also felt so so tight which is a symptom i have had before and comes and goes but it’s been pretty constant since spring. My breathing has also felt dealt difficult and annoying. For reference my lungs and heart etc have been checked and my pulmonologist thinks it’s not asthma but I’m starting to wonder if all this chest stuff is also pollen related/histamine. My muscles and joints in my arms particularly but also legs ache constantly which is newer for me as usually this is just in a crash too. My temperature disregulation has also gone wild and since getting sick I’ve ran on the hotter side but lately im Shivery A lotttt which is making the aching worse too.

I just wanted to reach out on here as I wondered if anyone else has been having this issue this spring? It seems like I’ve become reactive to everything!

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u/BigAspect6066 — 17 days ago