u/BetterSand9968

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A note because I know this can read as anti-psychiatry and thats not where I'm coming from. I take my meds. I see my psychiatrist. I'm not against treatment or diagnosis. Foucault himself wasnt arguing that mental illness doesnt exist, he was mapping how the systems we built around it carry a history that most of us never learn about. I think understanding that history is important, especially for people like us who live inside these systems. It doesnt mean rejecting them. It means knowing what you're standing in. This is information, not a manifesto. Take what's useful, leave what isnt.

So...

I've been reading Foucault's History of Madness and I keep thinking about how much of what he describes I recognise.

The basic argument is this: "crazy" is not a medical discovery. It's has a political history. What counts as madness, who gets locked up, who gets to decide.. all of that changed radically over the centuries, and none of it started with medicine. It started with power.

In medieval Europe, mad people were expelled from towns. Sent down rivers, put outside the gates. Feared sometimes, yes. Seen as prophetic sometimes. But not confined. The Ship of Fools is this image Foucault opens with, boats carrying their "cargo" of fools from town to town. Madness moved. It wasn't locked in a building.

Then 1656 happens. Paris opens the Hôpital Général. One percent of the population confined within months. Not because they were sick. Because they were inconvenient. The mad were thrown in with criminals, sex workers, beggars, the unemployed, blasphemers. There was no diagnosis inside. The register entries were things like "obstinate plaintiff," "great liar," "gruff, sad, unquiet spirit." Character judgments. Moral failures. Thats it.

And then the part that really got me. Everyone knows the story of Pinel removing the chains. It's in every psychiatry textbook as this great moment of liberation. Foucault says no. He says Pinel replaced physical chains with moral ones. The asylum wasn't freedom. It was a new kind of control where the mad person became responsible for their own cure, guilty of their own madness. The doctor replaced the judge who replaced the priest. The authority to define changed. The exclusion didn't.

I think about my own hospitalization alot when I read this. Three weeks involuntary in Porto. The experience didn't damage me through physical harm. It damaged me through disrespect. Through being treated as someone who had lost the right to speak for herself. "Lacks insight" is still the phrase they use, and it does exactly what those register entries did in 1656, it says: you cannot be trusted to know your own mind.

And this is where it gets important for what we're trying to do here. If bipolar pride means anything,,, if this community is going to be more than just a name.. we need to understand the ground we're standing on. The history of how "crazy" was constructed is not abstract philosophy. Its the architecture we still live inside. Involuntary holds, forced treatment, the disclosure trap, the fact that a manic episode can erase your credibility permanently. All of it has roots in what Foucault mapped.

It obviously changes from country to country. In some places forced hospitalization is terrifyingly easy to initiate. In others the law is more careful. But the underlying logic is the same everywhere: someone else decides if you're well enough to be free.

I'm studying this because I need to understand myself. Where the shame comes from. Why the hospital felt the way it felt. Why the word "crazy" still carries what it carries. I dont think you can build a movement without understanding the thing you're moving against. And the thing we're moving against has a 400 year head start.

If you havent read Foucault, I'd say start here. Madness and Civilization (the shorter version) is very readable. The full History of Madness is dense but worth it. Either way what he maps is.. uncomfortably familiar.

Has anyone else read this book?

u/BetterSand9968 — 1 month ago

And later, when she had read enough to realize she wasn't alone in this recognition, came Hester Prynne. The woman of the scarlet letter. The one who was publicly marked by shame and whose response was not to hide, nor to destroy, nor to go mad — but to wear the mark and embroider it with such art that its meaning changed. What was a sign of infamy became a sign of something else — of resistance, of refusal, of a dignity that no public judgment managed to destroy. Hester doesn't remove the stigma. She inhabits it. And by inhabiting it, she transforms it into her own territory.

https://www.instagram.com/reel/DW\_G6bqOcwO/?igsh=MWR1bHpqYnd3ampqeA==

u/BetterSand9968 — 1 month ago

Made a few stigma memes this week, dropping them here :) MEME is my therapy... humour.. we need to laugh in this life speccially us who know i mean REALLY KNOW what depression is!

some of these are funnier than they should be given how many times I've had to explain that no, essential oils or yoga are not a mood stabilizer.

IF any of these land, steal them. thats the whole point

which one hits hardest for you??

u/BetterSand9968 — 1 month ago

The overview is here: https://canva.link/klaab4fqztto7eh

I've been working on this for months now. Quietly, mostly alone, mostly late at night after work. And I keep going back and forth on whether to share it because its not finished and maybe it never will be and maybe thats fine.

But here it is.

I put together a full overview of what this project is, where it came from, what's been built so far, and where I think it could go. Its 40 slides. Its not a pitch deck, its more like.. me trying to explain to someone else why I cant stop working on this thing.

The short version: bipolar is the only major mental health condition without an organised pride or positive identity movement. There are reasons for that. The people who manage it well are exactly the ones who stay silent about it. Disclosure is a calculated risk and the maths rarely works out. So the public only ever sees crisis. And that loop just keeps closing.

I grew up watching my mom live with bipolar openly, without shame. She never hid it. That shaped everything about how I see this. When I had my own episode, three weeks involuntary, the TV and forced meds and nothing else (nobody listened to what happened, even questioned my work, when the psychiatrist just had to google my name and see i was not lying).. the episode wasnt the hardest part. The social aftermath was. The filter people put on you. The WhatsApp screenshots nobody ever talked to me about directly. The six months off work that weren't about recovering from mania, they were about recovering from what people did with it.

And I kept thinking.. where is the space for someone like me?? Someone stable, medicated, functioning, who also refuses to be ashamed of this. Not a warrior. Not a survivor. Not someone who beat it. Just someone living with it and refusing to let the worst moments be the whole story.

I couldnt find it. So I started building it.

The overview is here: https://canva.link/klaab4fqztto7eh

It covers the structural problem, the framework (hard and meaningful, both things true at the same time), what's been built so far, the phased strategy, the evidence base, and how people can contribute if any of this resonates.

I want to be clear about something. I dont have this figured out. I'm one person with a masters in science communication and a day job in digital marketing who happens to also have bp and a very specific inability to stop building things. This could be completely wrong. The framework might need to change. The strategy might be naive. I genuinely dont know.

So I'm sharing it because I want to hear what you think. Not just support, though that matters too. I want the hard questions. The things that make you uncomfortable about the word pride next to bipolar. The things you think I'm missing. The perspectives I cant see because I'm too close to it.

If you read it and think this is dangerous or misguided, I want to hear that. If you read it and feel something you havent felt before about your own diagnosis, I want to hear that too.

What does bipolar pride even mean to you?? Does it mean anything??

u/BetterSand9968 — 1 month ago

This one was inspired by a post from op DOm in this sub about caffeine dependence with bipolar II and ADHD. it was one of the most self aware things Ive read in a while and it made me want to dig into the actual research behind something alot of us deal with but dont really talk about. (credit here: OP Post)

caffeine doesnt just block tiredness. it plugs directly into the same dopamine receptor system thats already wired differently in bipolar. so the effect of any given cup depends on where your mood is sitting when you take it. same dose, same brain, same meds, totally different outcome. thats not randomness thats pharmacology

Some things that surprised me:

People with bipolar have the highest caffeine intake and serum levels of any psychiatric group studied. Researchers at Exeter found that most people with bipolar build strategic caffeine routines without even realizing it.. more when low, less when high. they called it a "delicate balancing act." and the big systematic review from Kings College London (2021) couldnt actually conclude that caffeine causes mood episodes. the relationship is way more complicated than "caffeine bad"

I drink loads of caffeine myself and for me its fine. my episode was triggered by something completely different. so this isnt a "stop drinking coffee" post. its a "heres what the science actually says so you can have a better conversation with your psychiatrist" post

I'm not a psychiatrist or therapist. just someone with bp who reads too much research and believes knowing your own brain is the thing that actually matters. The cards have sources on each one

u/BetterSand9968 — 1 month ago