Hi everyone,
I was diagnosed with epilepsy when I was 4 years old and went into remission when I hit puberty until about 3 years ago when I had a seizure. I had been experiencing a number of symptoms leading up to it and am still dealing with them today. I asked for an MRI based on awful chronic headaches that I usually wake up with and pain relievers don’t help, nausea, chronic dizziness/vertigo, balance issues, profound fatigue, difficulty finding words, I often combine words or say them in the wrong order or say closely similar words when I mean something else when speaking, memory issues, brain fog, etc. I finally asked my neurologist for an MRI hoping I could find some answers to all of these things I’ve experienced daily for 4 years and got my results yesterday. I was given contrast and the report says they found a 6mm mass on my pituitary that could either be a Rathke’s cleft cyst or a craniopharyngioma. I obviously googled it right away and saw that radiologists can’t definitively tell which it could be just based off initial imaging. After looking them both up I saw that low libido and diabetic-like symptoms regarding increased thirst/peeing more than normal was also a symptom which I never thought to bring up to a neurologist and had actually been talking to my PCP who had just ordered the blood test for diabetes. My symptoms don’t fit a Rathke’s cleft cyst and more support a tumor.
Has anyone else had an initial diagnosis like this after your MRI, and if so what was your experience/tests ordered to find answers? I got these results on a Saturday and won’t see my neurologist for at least a week due to booking.