u/BespokeBowtie

Untreated juvenile idiopathic scoliosis. First fusion at 38 nearly killed me so badly was it done. Next fusion t1 or t3 for some reason I can’t remember tonight to hip anchored seemed to fix it for 3-4 months. Now it’s failing at the top of the construct. Head and neck hunched forward and pain returning. I still have yet to return to work from after the first one. I’ll be 41 in July, so it’s been a ridiculous length of time to not have an income. I’m still unable to either sit or stand for any length of time nor am I able to walk any distance without feeling like I’ve been running a marathon. I realize there might be a job in theory I could do, but I’m just worried. Especially cuz it’s looking like #3 is right around the corner - what’s left to fuse right? Just my remaining bit of spine to skull. Really worried on that one. Recent diagnosis of lymphedema and have KFS and a few other documented chronic conditions. Would I be a candidate for disability? Is it worth looking into? Anyone’s experience, advice, comments, etc very welcomed!