u/Berrygoose8

▲ 7 r/mecfs

How much should I be expecting my friend to accommodate?

I'm mainly asking about a specific situation but I will be adding some context. I'm also curious about if anyone else has any similar experiences with friendships, relationships, or even family. I always try to avoid situations where I may need to be accommodated for symptoms because I feel guilty, or I try to compromise. I don't know where I lay on the mild-severe range of things since me/cfs is relatively new since for awhile me and my medical team thought it was only my POTS making me sick. I can't work, or drive, or go to school anymore, in on my bed most of the day but a few times a month I can go out as long as I don't have to do much. I also go to doctors appointments. Anyways, I just wanted to give some context. A huuuge trigger for me is light, sound, and not a lot of sleep. There's so much more but again, relevant to the situation. If my friend sleeps over, or I sleep over at her house, she has to sleep with the lights and tv on, and always keeps me up very late up until like 3 am sometimes when I want to sleep at least 11-12. If I go to bed any later than that I am absolutely done for for the next week or so. With sound an light taking up so much energy for me it's also hard because she said she's scared of the dark and has to sleep with a show on. I can't do that or I can't sleep, or if I can manage to fall asleep I can't sleep well. When we have sleepovers if I sleep I always wake up so sick, and then later in the day I crash really really hard and then I'm really in a flare for like a week. I've been trying to accommodate by wearing a sleep mask over my eyes but still for some reason I can't tolerate the light and the sleep eye mask gives me really bad sensory issues. I'm going to try to find a more comfortable one and see if that helps. I suggested a small night light but she said it's not bright enough. I don't know how else I can compromise. I get so symptomatic after our sleepovers. I don't know what to do I feel so bad but I don't know what else I can do to try to compromise. Am I asking too much? Even the night light would be a little rough since I need complete darkness but it's definitely much more tolerable than her LED lights or the lights I have in my room. We're both in our 20's if that gives any context at all too.

reddit.com
u/Berrygoose8 — 1 day ago

I heard side affects go away when you adjust. I’ve been on LDN 0.25 for 4 days now? I get very random mood drops? I’m fine most of the time but sometimes my mood drops HORRIBLY low out of no where.. I also keep getting double vision as well as unpredictable sleepiness.an example would be today. I felt more energy then usual than all of a sudden at 5 pm I got SO tired out of no where and had to sleep… I know everyone’s different but how long does it on average take people to adjust?

reddit.com
u/Berrygoose8 — 13 days ago