“Mumma, when I grow up, I’ll protect everyone.”
My 5-year-old son says this while drawing superheroes.
And I’m here… trying to figure out how to protect him.
Last year, he was diagnosed with Diffuse Midline Glioma — a rare brain tumor.
We rushed to Tata Memorial Hospital in Mumbai.
Radiation, treatment, hospital life.
Somehow, he fought through it.
The tumor even shrank.
Today he’s back to being a happy kid.
But the next step is something I’m struggling to handle.
A targeted therapy (ONC201 / Modeyso) that:
Is not easily available in India
**Costs ₹42 lakh per box**
**Around ₹4+ crore for treatment**
I don’t know how families handle something like this.
Delhi, I’m reaching out for:
\- Guidance
\- Contacts
\- Any kind of help
Even if you can’t help financially, just sharing this could help.
(Some people who’ve spoken to me asked for more details and want to help, so sharing links here in case it helps anyone understand the full situation and way to provide help)