u/BeeGlittering6943

I’ve been told my condition is very rare and it’s been hard finding anybody that can relate online. I was told that when I was born, I had a pit in my retina that would hopefully never give me issues. In December of 2024, my vision suddenly went blurry one day. I was told I had CSR, which made sense because the prior years were extremely difficult and stressful. I waited a few months hoping it would heal on its own but eventually found out I did not have CSR, but the pit in my retina that I had forgotten about had filled with gel in my eye and got trapped under my retina, detaching it. I had a vitrectomy in August of 2025, after a few months not enough fluid had been absorbed so I tried a diuretic medication which helped a lot over the next few months. Sadly the fluid returned when I stopped it so I got a gas bubble inserted/some lasering done a few months ago and most recently had another surgery. I’m a month post op and returning to the doctor this week to see if it’s gotten better, 2 weeks post op and the doctor said he wished more fluid had left but at least there was less in general and wasn’t more. I’m beginning to feel so defeated. I’m coping with the fact that I will probably never be able to see normally again since it’s been so long with my eye in this situation. I’m so scared to continue to have operations, I hate going to the doctor and have a lot of anxiety around it. I’ve gotten other opinions and they all told me that they would do the same thing that my doctor has done/was doing, but I’m starting to feel like we’re just trying stuff that’s not working and putting my body through hell. I was told there were things we had not tried yet, but that they were super invasive and could cause even more vision problems. At this point I want to just quit, my brain has adjusted to how my eye works now and I’m used to it after over a year of it being detached. I was told that if I gave up and left the fluid under my retina that it could cause permanent blindness if it got worse. Ive been so stressed that I’ve been clenching my jaw and grinding in my sleep, resulting in cracked teeth. Looking for any bit of advice, hope or resources that might help. I see so much on the Internet about detached retinas, but not the kind that I have. Is there anyone out there that has experienced this?