
MSLT results - how can I self manage?
I got my MSLT results back today on my patient portal and I’m flooded with emotions. I’ve had terrible EDS for 2 years. I’ve been to so many appointments and different specialists; until one referred me for a PSG and MSLT. I’m not looking for a diagnosis- I feel that it’s pretty clear. I have been crying on and off since reading the results because this means I’m not a lazy piece of garbage like I thought I was. I work, come home, make dinner, and crash.
My questions are: Do you think this is severe? And, more importantly, now that I finally know what’s going on, what can I do to self manage until my follow-up appointment in 3 weeks? My job is demanding and nap breaks are not possible. My crutch has been caffeine, which either doesn’t work or doesn’t work long. I feel like I’m fighting for my life to stay awake until I inevitably crash. Any advice is much appreciated!