What a cruel disease
My father’s Lewy Body Dementia appears to have taken a turn for the worst and I’m struggling right now. I’ve never posted in this sub before. I also don’t want to give away too much information, because I want to respect my father’s medical privacy. I will say, however, that he’s suffering from extreme autonomic dysfunction, mobility issues, hallucinations, etc.
He was diagnosed with LBD in 2022. Things were chaotic around the time of his diagnosis, but his neurologist was able to get him stabilized. For the years following he was doing remarkably well with only gradual declines in mobility and cognitive impairment, and amazingly no hallucinations.
Until now. Now it’s back. The hallucinations are back and the symptoms are worsening. We knew this was inevitable, that this day would come. But it doesn’t hurt any less. It’s such an exhausting emotional roller coaster. I often excuse myself to cry quietly in another room away from the rest of my family.