u/Avo_Alma

was in Rolling PEM before very severe almost extreme severe. week ago lost movement coundt sit up. went to the er at docs recs but all normal. so I can’t stay at hospital according to ass doctor that doesnt believe in ME. so options are make a trip home I cant handle in a very sensitive state(been crying too. or I can stay at psych ward just so I can like stay over night and get some benzos or smth…. ik I will crash tmrw and might need more help than I can get at home anyway so?? what do I do???

sorry for posting alot. my body is on fire and my brain is on fire. in rolling PEM for a long time. I cannot move it takes energy I don’t have b i do it anyway. I cannot not be on phone but I am anyway. I am anxious and restless. i can not speak, I can not think. and yet still I do too much anyway I don’t know how to stop/. i can not rest it is just endless hopelessness. how am I supposed to hope that I can get better when all I do is sabotage and suffer. I don’t think there is getting better for people like me.

i was wondering if anyone had any advice, or hope about getting better maybe?? Thank you

I was severe before going into a docs appt which made me very severe. I continued pushing through this (walking to the bathroom,being on phone ect) mostly because my parents didn’t understand what happened and now I am scared I will become extremely severe. what scares me the most is the possibility of never improvin. I feel really ill but I can’t calm down or stop cuz I’m so anxious.

any advice or recpvey stories or anything?? please

when ever i lay still for long enough mj body gets numb and Luke very hard to move unless i really think about it. i feel like i shouldn’t move but its so hard not too. the pain is worse. i think im becoming extremly severe cuz of the overexertion and all that i don’t know how to think anymore. or what too do. Im unprepared parents are unprepared and don’t do enough research,hopefully will change now.

please help tho i really need advice