Fellow friends, how do you handle committing to plans? Like with friends and family. I feel like I’m always letting people down because I can’t always attend events or activities anymore. Honestly I haven’t been able to do much of anything the last two months aside from doctor appointments and therapy. Other than that I’m mostly in bed. For example tonight I couldn’t attend a small Beltane festival my friend put on. This weekend my partners parents would like to go bowling at the casino and Sunday Is my mom’s birthday dinner. How do I tell them that a casino will be wildly overstimulating with the lights and sounds. I have loop ear pods but still. Bright lights and loud noise are a trigger. I have a med routine of propranolol 3x a day and have to check my bp before I take it because I also have orthostatic intolerance and if my bp it too low I have to withhold the med. I have baseline low bp. Have to eat a lot of salt etc. I’m still new to migraines and being chronically ill turned my life upside down. I just feel like people don’t understand it well and it’s so crappy letting people down all the time. :/ perhaps a bit of an overshare but it makes me really sad. Thanks for reading. 💙
u/AshtronTheDestroyerr
My neurologist prescribed Ajovy and I’m terrified try it and get side effects. I’m still new to migraine meds and so far have tried propranolol, Torodol, Benadryl. Just last night I was given a migraine cocktail at the ED of Torodol and Benadryl. Benadryl immediately made me hot and panic, high hr which is unusual because I’ve taken Benadryl oral pills occasionally fine my whole life for allergies. They gave me Ativan which stopped the panic and shaky after a bit and hr went back to normal. Btw. When not on propranolol my hr is baseline high.
Triptans scare me and some I can’t take along with other migraine meds due to other medical issues. I’m medication sensitive and have baaad medication anxiety. I’ve read several negatives from it but any success with Ajovy?