Will delete if this is inappropriate.
I am a carrier for an X-linked condition. If I conceive, there is a 1/4 chance that I have an affected male with severe hemophilia. With modern medicine, a lot of people say that now is the ‘best time’ to have hemophilia. But, I also hear about expensive medications, weekly prophylaxis, spontaneous bleeds, lifelong joint damage, etc. I would obviously not want to subject a child to that. I keep seeing conflicting opinions on the ‘validity’ (so to speak) of TFMR for a condition like hemophilia, where many people with the right treatment can lead almost normal lives. I’m wondering if anyone has had to deal with making this decision before, and if anyone can share their experiences. I’m family planning now and I just can’t wrap my head around it.
I know that IVF with PGT testing is an option. But, I’m specifically asking about TFMR.