u/ApprehensiveWinner27

▲ 1 r/POTS

Hello :) I have both MCAS and severe hyperadrenergic POTS. I wanted to share my recent tilt table in case this helps anyone with their diagnostic process. For context, the first number is for blood pressure/blood pressure range and then the second number is for the heart rate/heart rate range followed by my experienced symptoms.

PRE-TILT: 124/77, 81

ON TILT UP: 137-161/99-132, 136-162

EVERYTHING DARK, GREY, CHEST PALPITATIONS, TEARS, DIZZY, PRESSURE FACE, HANDS VIBRATING, KNEES WEAK

Min 1: 176-186/130, 157.. WORSE, DIZZY, ANXIETY, FEET TINGLING.

HARD TO KEEP EYES OPEN,

Min 2: 158/105, 150..CORNERS OF VISION GREY. WEAKNESS.

STOMACH HURTS, WEAK, TEARS

Min 3: 164-166/121-128, 157-166. HA WORSE 7/10 BACK OF HEAD, DIZZYNESS SEVERE, FEET TINGLING SEVERE, THROAT TIGHT SEVERE. LESS TEARS

Min 4: 142/100, 128-133..dry mouth/resistance. Able to open eyes more, tingling now only in R foot and L hand. Dizziness better, tears resolved.

Min 5: 128-138/102, 109-120. Vision improving.

Breathing improved. trouble swallowing same, still lots of leg weakness

Min 6: 143/101, 105-120. Tingling decreasing slightly, nausea, vision improving

Min 7: 146-158/110, 103. Improved strength. Tingling improving, vision improving, swallowing improved

Min 8: 132-154/106-112, 101-117. mild swallowing issue, moderate chest tightness. minimal dizziness, tingling almost gone

Min 9: 143/105, 103-113. Rt hand only tingling. Nausea improving. Vision almost baseline. Throat mild difficulty swallowing, Mild chest tightness only Min 10: 140-153/105-111, 111-115. swallowing same, nausea resolved. vision same, chest tightness same

TOTAL TIME 10 MIN

ON TILT DOWN: 119-125/82-86, 92-

105...breathing increased, improved

Min 1: 135/85, 95. Feet cold, numb, mild difficulty swallowing, vision normal, mild dizziness. mild tingling, moderate dry mouth.

Min 2: 141/91, 92 leg weakness improved, nausea mild, able to swallow better with effort, chest tightness improved, able to open eyes

Min 3: 134/87-91, 90-95. anxiety improved

reddit.com
u/ApprehensiveWinner27 — 14 days ago