Morning Spike Pattern
I am mainly wanting to see if this is a common pattern and that I’m not alone in this experience. I have POTS confirmed by TTT. In the mornings my heart rate will be “normal” but the slightest movement in the bed or my armchair will have my heart rate spiking 30+ bpm to the 110’s or higher and it’ll set off the app I use to monitor my hr. Last week I said ok I’ll get horizontal and when I did my HR dropped too fast (from 120 to 76) and set my app off again. I’m impossibly tired and mornings are difficult. I have a hard time keeping my eyes open and sometimes if I try I get nystagmus and my eyes will water. I’ll close them and doze in the chair but not be fully unconscious. Rinse and repeat. These spikes make me so lightheaded and I’m wobbly when I walk in the morning. I take a beta blocker and my heart rate is mostly normal after that kicks in til about 5or 6 pm - especially if I have to carry things or walk stairs which triggers additional episodes just from standing. But even so this morning I took the beta blocker early and still had episodes of spikes well into the morning.
It’s frustrating and I wish I knew why it does that and how I can stabilize it. I am also going through a separation from my husband right now who doesn’t believe me when I explain my symptoms and he calls it “a pattern of avoidant behavior,” and implies I’m lazy despite the data my app shows and all the doctor visits confirming there’s a problem. I wish I was just lazy. That would be an easier fix.