Drowning in Night Sweats and Vaginal Burning at 30. My doctors say my labs are normal.
I am a 30 (AFAB) looking for help from anyone who has successfully navigated complex hormone crashes.
I have PCOS, POTS, Fibromyalgia, and Hypermobility diagnosis. For almost two years, I have been living with severe, weekly flares of vaginal burning and irritation that feel completely untreatable. I am also waking up with drenching night sweats Bi weekly.
My doctors have run common pathogen, fungal, and bacterial panel (all negative), but they keep dismissing my blood work and won’t order any more hormone labs for me.
I have recently went out of my way and did direct to consumer testing thanks to this community for helping me learn that was something I could do. I’m currently waiting on fresh Day 3 labs, but here is my baseline from my last draw that that has me confused.
Baseline Labs (Day 3 of Cycle - October 2024)
• Estradiol: 32.8 pg/mL
• Free Testosterone: 2.0 pg/mL
• Total Testosterone: 23 ng/dL
• SHBG: 81.9 nmol/L
• LH: 21.1 mIU/mL
The Symptoms
Constant off and on burning/pain and irritation for 2 years. They told me it was yeast at first, but when it would return to burning and pain after a few days after fluconazole and tests show no positive result for yeast, they told me to just use boric acid indefinitely. That seems to help sometimes. They just have me using lidocaine for the pain and corticosteroid cream every other day..
Menopause has been ruled out. My ovarian reserve is “normal”
After some time I felt like the issue was I didn’t have enough T or E maybe?
I was told by a clinic (Circle Medical) that using compounded testosterone cream on my vagina would cause it to "shrivel up and waste away." This sounds like total nonsense given that the vestibule is packed with androgen receptors.i am even seeing specialists at OHSU and being dismissed and told to just keep taking boric acid..
• Systemic: Severe night sweats, joint instability (hypermobility flares), and POTS crashes.
• I’m currently on GLP-1 medication.
What I need from you:
Lab Insight: Do these numbers look as "Menopausal" to you as they do to me? (Especially for a 29-year-old at the time of the labs?
WA Telehealth Recs: I need a doctor licensed in Washington State (or Oregon) who understands Optimal vs. Normal.
I will update with my most recent labs once they are in.
Recently I was given compounded T cream from a friend about two weeks ago that I’m applying to the genitals daily as well as E cream and for the first time since all of this has started i have been able to find some relief that I never expected. This is why im really taking steps to look at my hormone labs again because this level of relief is something I have never had in the past year.