Hello, I had my pit tumour rejected in March 2023. I had a difficult recovery and was in hydrocortisone for 9 months. I weaned off and felt okay. For the last couple of months I’ve felt more tired than usual, harder to wake, sore muscles, low blood pressure, mood changes. I went to the ER in February because I was very lightheaded and confused for hours. They said my blood pressure was low and gave me IV fluids.
I saw my endocrinologist this week and she was alarmed and said these could be symptoms of low cortisol. I’ve been more stressed lately (started a new role at work), so is it possible that my cortisol could’ve dropped? It was just slightly above low in August 2025.
I read that some people need hydrocortisone for years/forever. Is it possible that I stopped too early? Can secondary adrenal insufficiency come back?
Thanks!