u/AncientExcuse6671

Been getting gradually more dizzy since January. Im either swaying on spinning in tiny circles. I physically sway when I try to sit still. Or my head will slowly lean to the side over time. And the random tinnitus I get is a nightmare. I'm also car sick at times, which I never was before.

Had a CT scan, nothing on my brain. Phew. Also had my ears checked for blockages.

Its been debilitating. I've had vertigo before but it's only ever lasted a week max. This has gone on for months... I've had random bouts of relief for about an hour or so and im able to have some peace, but it's always come back.

It's worse when I turn over in bed, bend over to pick anything up, walk down long hallways, etc. My glasses also make it worse. Starting to wonder if its caused by eye strain...

I'm under all sorts of investigations for my tachycardia, and my severe gastritis. It's been going on about 7 months and got bad in January. Currently its the worst its ever been.

I'm so depressed and afraid. I can't get out of bed because the slightest movement gives me a tachycardia episode. I'm sick of my heart racing, chest hurting, feeling dizzy amd sick. I feel like I'm being suffocated. My ears ring constantly and the whistling is always getting higher and louder until I'm literally flailing and screaming out for it to stop. I'm so weak, I feel starved. I haven't been anywhere besides hospitals or clinics this year so far because the discomfort is so strong. I can't watch TV or distract myself. Im delirious most days.

We're now in May and I'm yet to have done anything. I just lay here in constant pain and extreme 10/10 exhaustion. Nobody seems to want to get to the bottom of my fatigue. And I'm scared. I keep thinking, what if there's something seriously wrong with me? What if I'm going to die soon? I'm scared of blood clots because I can't get out of bed... I can't sleep anymore because I'm so restless. I wake up in a heavy sweat, heart pounding, head spinning to the point that looking around the room makes me so dizzy I feel like my eyes are going to pop out my head.

I really want relief. I want my head to stop spinning. That's a big one. I literally feel like I'm on a small boat crashing over angry waves. Or at its worst, I feel like I'm in a roundabout being violently spun around for hours on end to the point that the G force is pulling me by my head. It's horrific.

I keep going to hospital but they say they can't help me. Despite the fact I'm in tears begging. I feel so on edge. Scared to eat, sleep or even MOVE. I hate it all, I don't see a way out.

Went to the ER Saturday AND Sunday with abdominal pain so bad I was almost blacking out. Apparently, it's protocol that the GP call back the next working day after you've been to the hospital.

Monday nobody called, Tuesday nobody called, Wednesday nobody called, Today nobody called. This has been going on for WEEKS.

Eventually called to speak to 111 to ask wtf I'm supposed to do if the GP physically will not respond to me. They weren't sure what I could do... I got put through to a physician durin the conversation I found out my Iron is "low but normal"? I asked what that meant and they said something about how I "just scraped in" thus I'm technically not anemic. Wtf?

I called the GP, spoke to the practise manager and she told me I'm yet to be triaged. WTFFF?? I've been waiting since February!!!

I desperately want the endoscopy. My ears are constantly ringing, my head constantly pounding, always weak and nauseous. Can't take it anymore. But I was told an endoscopy can take 8 WEEKS OR LONGER unless I'm losing weight. Which I have been. Then it can be done in 2 weeks as part of the cancer prevention scheme.

I'm questioning why my iron could be low... I'm scared constantly because of the bodily sensations I have... thinking of swapping GPs after all this.

I dont know if this is a "known" thing. But ever since I battled with myocarditis back in September 2025, I've had dysautonomia symptoms. Cardiologist thinks its POTs.

Either way, my heart is FAST. like earlier tonight, resting at 110. It can go as high as 160. I have propranolol but I've only taken it twice since I got it a week ago because meds make me anxious.

I've never struggled with dysautonomia traits before that incident. I know you can develop POTs/dysautonomia from a wide range of infection, accidents ect. I wonder if I've developed some sort of tachycardia from the myocarditis.

I've been living off fruit and yogurt for the past few days. Tried some boiled carrots & brocoli with some very watered down gravy. And some airfried nuggets. Let it all go cold then ate it. Ate 95% of the veggies and was fine. But while eating the chicken, I got really faint. Felt like when you stay awake too long and your head drops for a moment. It wasn't as intense as it has been, but still enough to make me freeze up.

It's so scary when it hits. Luckily it doesn't happen *every* time i eat... Eating then within 10 mins feeling a hot flash across my forehead, my hearing and vision swimming for a moment. Feeling like in going to drop unconscious. Its a new symptom and it's really scaring me.

Do I need to be worried? I've been checked for this at the ER multiple times. It even happened while I was at the ER in the waiting room. But they weren't concerned about it. Said everything seemed fine. Is this just the gastritis? Why does it happen?

I've noticed sitting alone silently helps my symptoms. If I have to sit talking to someone, especially if they make me laugh, it can make my stomach ache, or trigger my dizziness. It usually calms down if I sit quietly afterwards.

Has anyone else experienced this? I feel like it's something I haven't seen anyone else mention