Finally have a neuro appointment and I'm so scared of being left down again
I've been diagnosed with FND for over two years, though symptoms have occurred for many years prior. I have chronic PNES, chronic pain and fatigue to start but my symptoms are very varied and relentless. When I was diagnosed it was due to the seizures and after watching me have huge seizures, the neurologist sent me home with no tests and a website to visit.
After moving back to my home town Ive waited over a year for a referral to the neurology department and finally got news I have an appointment tomorrow. I am so scared that they will turn around and say they can't do anything for me. I've been without medical help this whole time and honestly this illness has led me to some very dark places as my condition continues to hugely affect my quality of life. I just want help, I need help.
Does anyone have any advice on things I should be asking for/questions to bring to the neuro? My partner (also my carer) I'll be coming as well but I just don't want to mess up and appointment I've been waiting so long for. I live in the UK for context so FND treatment is very very hard to come by