I’m F23, 5’4 and 110lbs, so bordering on underweight if anything. However, I have gained 30 pounds in 2 years—some of that intentional (recovery from anorexia), some of it incidental. I initially saw an endocrinologist because I’ve gone 3+ years without a period, even when my ED has been stable and my BMI healthy. In addition I have hirsutism, easy bruising/slow healing, truncal collection of fat, extreme fatigue, hair loss, and loss of muscle in my limbs. However, my blood pressure runs low if anything, and again, my BMI is low-normal.
My endo tested essentially all my hormones, and the only ones that came back abnormal were my estrogen (low) and my cortisol (high, at 28 ug/dL.) The endo said he figured the cortisol was just due to the stress on my body re: low estrogen, but he ordered a dex suppression test just to be safe. While, I just got the results in my patient portal (image below), and I certainly did not suppress. My levels after the dexamethasone were still 12 ug/dL.
I’m hoping my endo reaches out soon to discuss next steps, but for now, to quell my anxieties and uncertainties, I’m posting here. Could this be Cushing’s? My ACTH was normal, so does that mean adrenal? What do you think next steps will be?