u/Aileen231

▲ 8 r/Hyperthyroidism+3 crossposts

Hi everyone,

I’m scheduled for a total thyroidectomy soon and wanted to ask for advice from anyone who’s been through this or supported someone who has.

A little background: I have Graves’ disease (Had graves and ted for 1.5 years medicine wasn't helping my TSH and my antibodies were worse after 1 year of medicine adjustments) with thyroid eye disease (TED), plus three nodules (one is about 4.5 cm), so my thyroid is pretty enlarged. My surgeon mentioned my incision will likely be on the larger side because of that. I also started the supersaturated iodine drops today in preparation.

One thing that might make my situation a bit more complicated is that I had sleeve bariatric surgery about 4 years ago, so I’m trying to be extra mindful about recovery, nutrition, and medication absorption.

I’d really appreciate any insight on:

  • What recovery was actually like (pain, mobility, energy levels)
  • Things you wish you had prepared ahead of time
  • Helpful products (pillows, scar care, throat relief, etc.)
  • Eating/drinking tips post-op (especially if you’ve had bariatric surgery)
  • Voice changes or swallowing issues—what to expect
  • Managing calcium levels or supplements afterward
  • Anything specific to Graves’ or TED patients after surgery

I’m trying to go into this as prepared and realistic as possible, so even small tips would mean a lot.

Thank you in advance 💛

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u/Aileen231 — 14 days ago