Need for a 2nd opinion?
Obviously I am truly hoping I have BFS, which I'm sure is the case for most of us. I'm wondering if I should get a second opinion. I went to a neurologist a week ago due to hand tremors which started in January. They have really picked up in March to almost every other day. Sometimes you can see a fasciculation in my palm and subsequent tremor and sometimes not. It's either hand. It only lasts 2-10 minutes at most and really just once a day. Then in the last month, I've been getting the fasciculations all over my body, but only for a second, and they happen so quickly I can't see them. I really wouldn't say I have any weakness at all. One single day I had tremors in both hands, all day and a different motion than normal, this was a day after I had drank a significant amount and with no visible fasciculations. TBH I thought I was going to be getting a Parkinson's diagnosis when I went in, but the doctor told me no based on the videos I showed him.
He said there was no need for an EMG because unless I had the tremors or fasciculations during the test, it would just show normal? However, it seems like a lot of people in this group have gotten that test done. That is why I'm wondering.
He said based on the evaluation in the office, we can't do anything but wait to see how I progress over the next 6 months. He said I either have BFS or ALS, but he doesn't *think* it's ALS based on what he could see.
I really didn't think it's ALS based on no weakness, but I also don't know if it's BFS or if we can truly just rule out Parkinson's since my primary concern is hand tremors?
Any opinions or insights are appreciated. I am also 31F. So I realize that makes ALS unlikely as well.