u/Affectionate_List248

[ORIGINAL POST: https://www.reddit.com/r/spinalfusion/s/lG0in5Uwhz ]

Sorry if making another post is against the rules, I have like 130 comments on my other one and id like to read fresh messages without getting overwhelmed (I tend to read sentences over and over in a paragraph and get lost as to where I was at haha)

Apperantly it took her looking it up on google finally adn seeing 'oh that much drainage isnt normal!!!' WHEN IVE BEEN LOOKING TBIS UP FOR DAYS AND BEGGING HER TO LISTEN TO ME!

But theres great / bad news!

Bad news, Im still leaking a lot of blood :( It doesnt really smell like blood but thats probably because its mixed with fluid. Some pads are a bright red, others are like a darker, even sometimes black. I have stained about 2 shirts and 2 undwears respectively since yesterday.

Good news??

MY MOM FINALLY LISTENED TO ME! She finally decided to call the John Hopkins office where I got it done, and shes waiting on a response! And my parents say if it continues to bleed like this for the next day or so they'll take me back to the hospital.

Thank you to every kind commenter whp helped to calm me down, especially the people who personally DMed me to let me have someone to talk to.

While I don't appreciate some of the passive aggressive comments, this is the internet and I cant expect things to go my way everytime—not everybody is sunshine and rainbows and has politeness in their heart. But the majority of you were very very nice! I will keep updating this post, and I am just really happy that my parents finally listened to me.

Thank you people of reddit. :)

Edit edit: 1:45pm Post surgery appointment tomorrow to see whats going on!

reddit.com
u/Affectionate_List248 — 9 days ago

If you havent seen my original post, you can see it here: https://www.reddit.com/r/spinalfusion/s/Yrd5tvb1KA

TL:DR: 15 year old girl who had T3-L3 PSF on April 28th, 2026.

(INFORMATION! I was able to open my moms eyes. She finally decided to look up what ive been looking up and realize that this amount of drainage shouldn't be happening in this situation! We are going to get it checked out tomorrow at 1:45pm :) Thank you for your support and words, everyone! Apperantly it took her looking it up on google finally adn seeing 'oh that much drainage isnt normal!!!' WHEN IVE BEEN LOOKING TBIS UP FOR DAYS AND BEGGING HER TO LISTEN TO ME!)

(haha jk they canceled my appointment.)

But its gotten a whole lot worse. We decided to change my dressing a bit because the bulkiness hurt so badly. And after an hour with it being on, my mom checked on it again and saw this :( (photos) they are completely soaked and if you touch them your finger turns red.

My mom still keeps saying this is normal, but it seems like im bleeding way way excessively. Can anyone please give me advice, recommendations, or just anything that isnt brushing it off like my mother?

Thank you in advanced, reddit :)

Update: after reading some of these comments i feel like i may just be an overdramatic crybaby and im really sorry about that. I have a lot of anxiety and at 15 its scaru for your first surgery to be this big. Im taking ot day by day amd im just gomna try my best. Thank you yo everyone whos been really nice and understanding: its so hard when you feel like nobody listens.

Update 2: IBUPROFEN IS IN MY DISCHARGE PAPERS! ITS ALLOWED!

Update 3: Please stop telling me to take Tylenol as I am not allowed to take it due to the fact that it messes with my medical device sm.

Update 4: i am feeling a lot better this morning and my mom finslly said if it didnt get any better and i kept leaking like this she would call my surgeon, so thats progress! Thank you for all of the nice comments :)

u/Affectionate_List248 — 10 days ago

Hi redditers! I am a 15 year old girl and on Tuesday, April 28th I has T3-L3 PSD spinal fusion surgery!

I was discharged from the hospital at 12pm on may 1st (two days from today) and its felt so great!

But I have been having some problems lately. I know with back surgery it's going to be painful for a long while and the road to recovery is going to be brutal.. but I have major anxiety and I just need clarification if everything is okay.

Last night I woke up around 4:30am tp the back of my underwear feeling wet. I thought it may have been sweat, but when I checked it was a rusty blood color. It wasnt like completely soaked, but it definitely wasn't blood.

I called my mom and told her about it and she told me that our doctors told us that bleeding was normal so I just changed my underwear and fell asleep again.

However, in the morning when I woke up I ran into my dad and he told me there was blood on my shirt. I told my mom and she finally did something—changing my dressing and putting a bit of extra patching on my lower back.

For a few days most of my pain has been my lower back, but im not sure if its becauss something is up with mt incision or if thats where they did most of the spinal surgery.

My overall pain is around a 4, except when i lay down it always feels like im laying on something due to my lower back.

Around 3 hours later my new dressing started to show blood again.

Attached I have attached photos of my spine before and after surgery, the dressing after my mom changed it, and my bloody clothes.

Again, please keep in mind that I am only 15 with a lot of anxiety, so please try to be gentle with me and explain in a way that would be easy for me!

Thank you in advanced redditors! :)

u/Affectionate_List248 — 10 days ago