▲ 2 r/ehlersdanlos
Hi! This is my first time posting on this sub, I was diagnosed with ehlers danlos at 15 around 4 years ago and until yesterday I hadnt gone to the doctor for almost 2 years because my experience with doctors after being diagnosed was horrible, and unhelpful. My appointment with my new nurse practitioner was amazing, she listened to everything and didnt judge, she referred me to dr bradley tinkle because she said her other eds patients love him. But looking at some of the things people have said about him on here im wondering if I should even bother? Its a 4 hour drive and I really dont want to be told that my lifestyle is whats wrong again. Has anyone recently seen him? Thanks!
u/Affectionate_Jump150 — 15 days ago