u/Adventurous_Cow_3255

Ongoing issues post colectomy with IRA

34F - diagnosed with dyssynergic defecation in my 20s after a few years of constipation and then an acute colonic obstruction…. underwent mesh rectopexy around 8 years ago with minimal improvement, subsequently diagnosed with colonic inertia and underwent laparoscopic colectomy with ileorectal anastomosis around 5 years ago, since this operation I have (as anticipated) very frequent liquid stools with urgency, but still struggle with incomplete evacuation and straining ++ , now have chronic perianal skin damage and fissures from acidic output and straining to pass the liquid stool…. I have the sensation that trapped gas is blocking my stool from passing and have to release the gas by doing various yoga poses in order to pass small amounts of stool at a time.. I am seeing a pelvic floor physio soon to have another go at biofeedback (did this years ago but was abandoned due to colonic inertia) but don’t even know how I can tolerate it with how painful my perianal area is and the likelihood that inserting something in my rectum as part of the therapy will cause fecal leakage… just seeking any advice, support, success stories…

reddit.com
u/Adventurous_Cow_3255 — 5 days ago
▲ 7 r/eds+1 crossposts

Dyssynergic defecation ruining my life…

34F - diagnosed with dyssynergic defecation in my 20s after a few years of constipation and then an acute colonic obstruction…. underwent mesh rectopexy around 8 years ago with minimal improvement, subsequently diagnosed with colonic inertia and underwent laparoscopic colectomy with ileorectal anastomosis around 5 years ago, since this operation I have (as anticipated) very frequent liquid stools with urgency, but still struggle with incomplete evacuation and straining ++ , now have chronic perianal skin damage and fissures from acidic output and straining to pass the liquid stool…. I have the sensation that trapped gas is blocking my stool from passing and have to release the gas by doing various yoga poses in order to pass small amounts of stool at a time.. I am seeing a pelvic floor physio soon to have another go at biofeedback (did this years ago but was abandoned due to colonic inertia) but don’t even know how I can tolerate it with how painful my perianal area is and the likelihood that inserting something in my rectum as part of the therapy will cause fecal leakage… just seeking any advice, support, success stories…

reddit.com
u/Adventurous_Cow_3255 — 5 days ago