u/AdventurousAsh19

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(Reposting with sleep study pictures. They scored the study twice, this was the second score, first said it fell under the "mild" sleep apnea category at 14.4 events per hour)

Normal night of sleep for me is moving around like crazy, night terrors(had them since I was a child), sleep talking, sleep walking, and always sleeping on my side. No snoring, no gasping for air, no struggling to breath. Not even daytime sleepiness usually.

During my sleep study, I could only fall asleep on my back(something I can never do at home), 0 movement, and repeated nightmare of unable to breathe with people standing over me (consistent with sleep apnea). I only fell asleep like three times for four hours total. It took me five days of sleeping at home before I fully recovered.

I had my followup with my doctor today and the APRN was trying to convince me that the high number of REM events that happened on the sleep study was happening everynight, I tried to explain for the above reasons that it might be sleep apnea but it was not as severe as the study said, but she wouldn't listen at all. I eventually just gave up trying to explain it.

I'm also frustrated because I didn't get any other sleep disorder diagnosis as they are blaming it all on the sleep apnea. Vs a parasomnia sleep disorder. In all honesty I think it's both. I also have PTSD which can cause bad sleep too, but the PTSD came when I was a bit older and I've been sleepwalking since I was a kid.

I'd like to hear other peoples experiences, if other people have more than just sleep apnea. Thoughts on trying to bring up concerns again or how to word it to get doctor to consider it? Repeated sleep study seems like a waste of $800(that was with insurance).

u/AdventurousAsh19 — 13 days ago

Normal night of sleep for me is moving around like crazy, night terrors(had them since I was a child), sleep talking, sleep walking, and always sleeping on my side. No snoring, no gasping for air, no struggling to breath. Not even daytime sleepiness usually.

During my sleep study, I could only fall asleep on my back(something I can never do at home), 0 movement, and repeated nightmare of unable to breathe with people standing over me (consistent with sleep apnea). I only fell asleep like three times for four hours total. It took me five days of sleeping at home before I fully recovered.

I had my followup with my doctor today and the APRN was trying to convince me that the high number of REM events that happened on the sleep study was happening everynight, I tried to explain for the above reasons that it might be sleep apnea but it was not as severe as the study said, but she wouldn't listen at all. I eventually just gave up trying to explain it.

I'm also frustrated because I didn't get any other sleep disorder diagnosis as they are blaming it all on the sleep apnea. Vs a parasomnia sleep disorder. In all honesty I think it's both. I also have PTSD which can cause bad sleep too, but the PTSD came when I was a bit older and I've been sleepwalking since I was a kid.

I'd like to hear other peoples experiences, if other people have more than just sleep apnea. Thoughts on trying to bring up concerns again or how to word it to get doctor to consider it? Repeated sleep study seems like a waste of $800(that was with insurance).

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u/AdventurousAsh19 — 13 days ago