u/Adept-Commercial-398

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I have been making lots of posts recently because I'm having a really tough time and I'm trying to figure out what's going on.

I had mild/moderate ME, that almost immediately became severe as soon as I moved back into my mothers house. This is the same home I believe I developed C-PTSD in, given it was a very unsafe living environment and I now believe this is linked to the reason why I went from mild/moderate to severe so quickly.

Fast foward I took urolithin A for one week, and it caused hyperpots and completely tanked by HRV. I made a ******* attempt four weeks ago, which should have ended in a severe crash and worsening of my condition, however my ME has been much better since. I'm trying to work out if the Urolithin A worked, and my body went into fight or flight /hyper pots because it didn't know how to use all the energy it now had. OR if there was never anything wrong with my mitochondria, and rather my attempt served as an immense emotional catharsis, and all my unprocessed emotions were severely worsening my ME.

The flight/fight/hyperpots stopped for one week after my attempt, but has come back worse. Four weeks on I still haven't had a crash, and have been able to walk and talk much longer than I have had for a year now. Despite this, my HRV is tanking, my cortisol levels are really high, and it feels like my body is full of adrenaline 24/7. I had been paying for a flat since the beginning of the year despite not being well enough to move in, which I was able to move into 2 weeks ago. But as soon as I got there, the fight or flight got so much worse. The only thing I can think that would explain this is my mother's house has a depressing effect on my nervous system, and now my body has access to even more energy it is struggling to appropriately use it. The only things that help are crying, laughing, and physical tasks that use up energy. However, since at my mum's house I didn't get cues I was nearing my limit, I'm terrified to do so and make things worse.

I'm taking proponolol for my raised heartbeat, and lorazapam for the anxiety, however neither get rid of the immense dread I feel all day. I've also been having weird symptoms like excess thirst and swallowing. I'm on 10mg of escitalapram and am slowly titrating up.

I think there could basically be two things going on: Something similar to the nerve "wake up" response people get from taking b12 / one or some of the co factors required for mitochondria production are now deficient. I also accidentally took too much d3 so it's likely my magnesium is low (going to test all of these).

The other thing that I think could be going on is delayed grief. During my 10 months of being bed bound I thought I was processing my childhood by thinking about it, however I was too sick to speak to anyone about it. At the time when my health was at its worst, my cat and dad died a week apart. Not to mention I was living with my mum and sister who I now believe to be abusive. Is it possible that my body delayed processing all these feelings until now when I have the energy to do so?

Has anyone else had a similar experience, and do you have any advice?

I have been making lots of posts recently because I'm having a really tough time and I'm trying to figure out what's going on.

I had mild/moderate ME, that almost immediately became severe as soon as I moved back into my mothers house. This is the same home I believe I developed C-PTSD in, given it was a very unsafe living environment and I now believe this is linked to the reason why I went from mild/moderate to severe so quickly.

Fast foward I took urolithin A for one week, and it caused hyperpots and completely tanked by HRV. I made a ******* attempt four weeks ago, which should have ended in a severe crash and worsening of my condition, however my ME has been much better since. I'm trying to work out if the Urolithin A worked, and my body went into fight or flight /hyper pots because it didn't know how to use all the energy it now had. OR if there was never anything wrong with my mitochondria, and rather my attempt served as an immense emotional catharsis, and all my unprocessed emotions were severely worsening my ME.

The flight/fight/hyperpots stopped for one week after my attempt, but has come back worse. Four weeks on I still haven't had a crash, and have been able to walk and talk much longer than I have had for a year now. Despite this, my HRV is tanking, my cortisol levels are really high, and it feels like my body is full of adrenaline 24/7. I had been paying for a flat since the beginning of the year despite not being well enough to move in, which I was able to move into 2 weeks ago. But as soon as I got there, the fight or flight got so much worse. The only thing I can think that would explain this is my mother's house has a depressing effect on my nervous system, and now my body has access to even more energy it is struggling to appropriately use it. The only things that help are crying, laughing, and physical tasks that use up energy. However, since at my mum's house I didn't get cues I was nearing my limit, I'm terrified to do so and make things worse.

I'm taking proponolol for my raised heartbeat, and lorazapam for the anxiety, however neither get rid of the immense dread I feel all day. I've also been having weird symptoms like excess thirst and swallowing. I'm on 10mg of escitalapram and am slowly titrating up.

I think there could basically be two things going on: Something similar to the nerve "wake up" response people get from taking b12 / one or some of the co factors required for mitochondria production are now deficient. I also accidentally took too much d3 so it's likely my magnesium is low (going to test all of these).

The other thing that I think could be going on is delayed grief. During my 10 months of being bed bound I thought I was processing my childhood by thinking about it, however I was too sick to speak to anyone about it. At the time when my health was at its worst, my cat and dad died a week apart. Not to mention I was living with my mum and sister who I now believe to be abusive. Is it possible that my body delayed processing all these feelings until now when I have the energy to do so?

Has anyone else had a similar experience, and do you have any advice?

I took Urolithin A for one week, and it seems to have drastically improved my ME and simultaneously fried my nervous system. My body is releasing adrenaline all day long, causing an elevated heart rate, including at rest, and immense anxiety. I am also drinking 2 liters of water a day but am still thirsty.

I haven't been able to find anyone who had a similar experience, until today where I saw a post about ganglion blocks causing a similar response, and people in the comments were talking about how vitamin d, b12 injections, and iron infusions had similar effects on them.

I guess I'm wondering for those who had these experiences, how long did they last, and what helped. I'm trying propranolol today and am going to up my escitalopram. (The propanolol lowered my hr, but im still filled with dread. The only thing that seems to help is hysterically crying, and using up some of the energy I now have, however I know this is quite risky given an elevated heart rate can make a crash more likely. Lorazapam also hasn't helped, as it's not as though my thoughts are racing, I just feel filled emotions that need to come out.

Do people have advice on how to increase your energy output in a way that is safe a consistent, and won't risk a crash? And are there more bloods you'd reccomend?

My bloods show high cortisol and prolactin, however, i have PCOS, so all this stress is likely messing with my hormones. Are there other's with PCOS who have had a similar experience? And what helped?