3 years of being tested for everything my doctors could think of and ive gotten a diagnosis of cfs. Ive been fighting the diagnosis for a while now wishing it was something else. I watched my Oma (Dutch for Grandma) become wheelchair bound and put in a care home due to me/cfs and it honestly was terrifying for me to think about getting.
My life has gone from sole breadwinner and supportive husband/father, to bedridden for about half the day, sometimes much longer. Its incredibly difficult and deeply hurts for me to have my kids grow up asking why there dad cant take them to the park or teach them how to ride a bike, or even bring them to swimming lessons while there mom works 60 hours a week to support us like I used to do (and i loved it) I pushed through all my crashes for years and drove my health down to where Im at now. Which is not functional. I cant stop pushing to give my children a good life and not burn out my wife. Shes already taken on 2 jobs plus the added burden of me at home needing so much help.
I guess I just want to know Im not alone with these experiences?