u/Actual-Lynx9886

I was diagnosed with the possibility of having MSA – P back in December 2024 but after extensive testing the diagnosis wasn’t confirmed as MSA – C until earlier this month. Did they diagnosis was long-term coming and confusing because although I had the physical symptoms and my blood work showed the proteins associated with a disease. My brain scans did not show the plaque that is normally associated with it. I have been to a neurologist who is best in the state as well as a neuropsychologist and two other specialty neurologist, and they all agree that although I do not have the indication of plaque in my brain, the other symptoms are strong enough to confirm that I have MSA – C. On top of that I have ADHD, diabetes, type three kidney failure, have to have my injections to keep from going blind and regularly suffer from congestive heart failure. The thing I struggle with the most is becoming a burden on my family and friends. The doctors have been helpful with the diagnosis, but don’t spend a lot of time discussing what the diagnosis actually means and how it is going to impact your life so some suggested that I should see a psychologist or a counselor to discuss my feelings however, I’m not sure. I understand my feelings myself. Are there support groups I should look at considering my convoluted mental and physical issues?