Newly diagnosed
Hi All,
I (37 M) Just had an appointment yesterday due to major migraine development where I was told that after my MRI scan that I have a Chiari Malformation. I wasn't given any specifics on depth etc. I was told that it was found over 6 years ago when I was in hospital due to a severe overnight headache but it was considered "incidental" and unlikely the cause.
I have been on medication for the past 6 years including propranalol of increasing dosage, more recently I've been put on Candesartan as the propranalol was ineffective. Likelihood now is that neither is necessary and helpful.
I'm awaiting a neurology appointment (and being UK and NHS based who knows how long that will be!)
Feeling quite overwhelmed. I'm glad there's an explanation for so many symptoms I've suffered with over the years but still don't know how to feel.
I do pole fitness which often involves spinning/inverting and often feel rough afterwards so may need to scale back on that exercise now that I know it is the likely cause. But honestly the most telling symptom for me was that whenever I have a severe laughing fit that leaves me breathless the instant pain is so recognisable!
Don't really know what I'm looking for by typing this, think I'm just getting it off my chest.