u/Active-Phone-2122

Need positivity

I finally had my neurology appointment the other day for dizziness and fasciculations all over my body. They found hyperreflexia, positive hoffmans sign, and mild asymmetry (left greater than right). They also noted fine fasciculations in bilateral calves which I don’t even feel but they’re there. I only feel the twitches that are strong. Before this appointment, ALS left my mind and I was no longer worried about it because I wasn’t having weakness and I’m still not, plus the twitches happen everywhere, not just my calves. But I googled the crap out of it and of course, google says to get in my coffin. I also do not have atrophy. I just got my blood work back and my CK was 37 so I assume that is normal. Everything else blood wise was normal too except sed rate was 29. I’m 27 years old and a parent to a toddler who needs me so the thought of having a disease, let alone a deadly one, scares the shit out of me. I do have 3 MRIs and an EMG scheduled in 2 weeks but that feels like forever from now.

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u/Active-Phone-2122 — 18 hours ago