u/Acceptable_Row2078

Hey people

I’m wondering how having an Endometriosis (and/or adenomyosis) diagnosis has affected your guys’ relationship or more so marriage ?

I got my diagnosis about half a year ago and it’s been a topic with my boyfriend.
We had to talk about fertility, how he can support me and what this means for us.
Around the same time he got a chronic disease diagnosis as well, which luckily for him has been dormant since his surgery.
While I’m doing worse every day.
It’s definitely affecting us and we’re planning on getting married soon, so I’m worried about the life we imagined.

So I would love to know what it’s like for you guys out there? How is this affecting your marriages, how are you dealing with it, any advice ?
Especially since this also touches the topic of having kids and how or if that will be possible. Did that change anything for you?

Hey people 🌸

I got my adenomyosis diagnosis a couple months ago.
At first I felt relieved, especially when my gynecologist directly said to me, that none of it was in my head and that it is adenomyosis.
I’ve been taking the pill without breaks for over two years now to stop my periods and the symptoms.
For a while that worked great.
Now I just feel constantly exhausted, I always feel like I have a bladder infection. I get cramps when I need to go to the toilet. My general day to day pain is increasing and the flare-ups with cramps are getting worse as well.
I can’t do lifting in the gym anymore, not even lifting things at home without inducing pain. And slowly but surely it’s taking riding as last pain-free sport from me as well.
I also have chronic bleeding.

I’m very aware that many people have much worse symptoms than this still and I’m somewhat lucky.
But I barely feel like myself anymore and also kinda left alone.
I don’t like taking BC and what it does to your body especially if it’s not really helping anymore. I also don’t know how severe the adenomyosis actually is, because for some reason they never gave me an MRI and they didn’t tell me anything post-surgery.
My gyno just keeps on switching my BC but it doesn’t help.
For me personally it’s very hard to advocate for myself towards doctors, because they rarely take you seriously, as many of you probably know firsthand.

I take the supplements, I sleep enough, I don’t drink alcohol, try to better my eating habits and try to do light exercise.
It’s so mind boggling, that we can’t do more, simply because women aren’t important enough to do more research.

I just needed to vent a little and maybe find some people out there in similar situations. :)