Hello wonderful people,
My 55 years old sister was diagnosed with early onset Parkinson disease almost 4 years ago. The doctors were not sure at the beginning and due to late diagnosis, she couldn't get the right medications from the start. Recently her condition has become worst, and she can't move at all. She is on bed, can't swallow, speak, not even move in bed. This is so heart breaking for the family. I believe it all started almost 6-7 years ago when she was making loud noises in her dreams. Also had sleep issues. 4 years ago, she had walking issues and was taking a lot of time going to washroom, eating, walking etc. We have contacted top neurologist in Pakistan and they now saying its Parkinson plus. The advanced form of disease quickly damage motor neurons and things might get worst :/
Being the younger brother, this is something very difficult and I don't know what can be done to relieve her pain/symptoms. She might have less time left. She is eating/drinking while on bed. She had bed sores but now they are fine. Her heart efficiency is also 40% and I am also concerned about pneumonia, as it is difficult for her to swallow anything. I asked doctor for the possibility of deep brain surgery, and he didn't recommend it at this stage. However, she is taking medications regularly (Sinemet etc). I always think, what was done wrong, late diagnosis? Sleep issues could address earlier. Maybe she should have focused on her exercise/diet earlier in her life. My father was healthy at age 80, mom doing fine at 75. No one in the family had any neurological issues. I feel very low while writing this, but is there something that can be done, or just pray and be ready for her peaceful departure. We are trying our best to comfort her in our capacity, but at the same time we feel helpless.
Thank you for reading this!