My ms neuro practice uses a portal and doesn’t really like to talk on the phone. Love it.
I’ve been having more MS symptoms for about a month now. At my 6 month appointment 3 weeks ago I told them hey I’m having progression or something. Doing a lot worse suddenly. As in all my previous stuff coming back at the same time. Not NEW stuff but worsening of existing stuff.
Last week I fell for the first time while out doing my usual 4 mile walk. They did an MRI two days later and nothing is enhancing.
They are currently telling me that I should go to the ER (through the f’ing portal of course) What are they going to do in the ER for me since I have no disease activity? Should I be getting steroids and can’t that be done at an infusion center?
I feel like maybe it’s time for me to switch docs but maybe they’re all like this. I’m recently diagnosed a year and a half ago.