Don’t know what to do
My journey to BC:
Mom was diagnosed with pancreatic cancer last year and tested positive for the ATM gene mutation.
I got genetic testing and also have ATM mutation.
Got my first mammogram in March.
Called back for a second in April.
Biopsy April 24th.
Told I have BC April 28th, the day after my mom started hospice.
Invasive ductal carcinoma, ER+PR+ HERS2- grade 1, stage 1.
I’ve learned this means I’m lucky.
Decision I need to make:
Tx option 1- lumpectomy + radiation + hormone blockers.
Tx option 2- DMX with reconstruction + hormone blockers
About me:
I’m 37, divorced mom with 2 boys in elementary school. I have an amazing bf of almost 3 years that is holding me afloat lately. I’m otherwise healthy, in good shape, still rock a bikini and WAS planning to get a boob job next year (before BC Dx.) My kids and I are extremely close with my mom, so this is an extremely difficult, heavy time. I have not told my boys about my BC and rather they don’t know after the trauma with my mom’s cancer this year.
I just had my consult with my breast surgeon and she almost made it seem like a DMX is overkill. Then what she said about not getting any screening after DMX vs the bi-yearly screening I’d get after lumpectomy, even though both options have the same risk of recurrence, scares me.
DMX- pro’s: I really don’t want radiation. I can tell my boys it’s a prevention based surgery. I thought less stress about recurrence given my genetics. I get the look of implants I wanted-kinda. I’m approved for nipple sparing.
DMX- cons: it’s a major surgery with a longer recovery. Loss of sensation-though I may be able to get a surgeon that does nerve preservation (I know it’s not guaranteed). Worry that I might not like them. No screening for recurrence.
Lumpectomy- pro’s: less invasive, easy recovery. Keep my nipple sensation.
Lumpectomy- con’s: radiation. Higher stress for my kids (they’ll be on summer break and it may be harder to hide). Stressful scans every months. Difficulty with future breast augmentation or reconstruction if needed due to having a post radiation breast.
If you’ve read this all, I’d appreciate any feedback, huge thank you in advance!
Note- I feel horrible complaining when I know I have it so much easier than so many of you. I’m in awe of the strength you all have.