For those that need hope.
I wrote this on another forum in July 2024, after battling this disease for about a year prior.. I'm still clear to this day, 100% clear. Dont give up hope theres an answer out there for you. Just gotta find it.
"After a year of trying every supplement on the market, changing my diet, giving up alcohol and applying nearly every cream available in modern medicine. I can say with confidence that none of it worked.
The only thing I can say really worked for my LP/OLP is Otezla and UVB therapy. I'm in remission, haven't had a new lesion or flare up since March. My skin lesions are gone, and my OLP is about 95% gone. The pigmentation is still on my body, but it's fading slowly. My OLP has only a small feint white line on the inside of my cheek. It use to look like a spider web in my mouth.
If your insurance covers it and you can deal with the side effects, I implore you to ask your doctor about Otezla..I was offered 2 other drugs that supposedly had a higher success rate, 1 of them being a Jak-Inhibitor. But decided on Otezla. I wish i would have started this drug last year..! Also if you haven't started UVB therapy, go now. It takes alot of sessions but it definitely helps speed along the healing process.
Also, try not to Google every little thing about our condition. I know it's hard, but the added stress just made my flares worse."