u/60019077

▲ 5 r/Endo+1 crossposts

hi all!!

i’m kind of spiraling a bit and just want to hear from people who’ve gone through this.

i just had laparoscopic surgery where they found stage 2 endo and excised everything. during surgery they also placed a mirena IUD.

for context, i’ve had mirena before. at first it was fine, but within like 2 years things went downhill and my pelvic floor basically collapsed, so i had it removed. i’ve tried other birth control too and my body is just really sensitive to hormones, which is why i’m already on edge about this.

i’m about a week out from surgery and:

  • i feel super puffy overall (ik this is normal bc i'm only 7 days post op but, it's not helping lol)
  • my mental health is honestly not great rn, just very anxious/not myself
  • i was spotting at first and now it’s more like thin white-ish discharge (no strong smell, but i do feel more of an urgency to pee and it does smell a bit off)
  • and i’ve had to take tylenol + advil basically every day just to deal with the pain

i did reach out to my specialist, and she said it’s not super normal to be feeling this way with the IUD, and that if it’s misplaced they would have to remove it. so now i’m even more in my head about it.

also, i’ve had really bad bladder issues in the past tied to recurrent infections (like BV, etc.). i was dealing with that constantly, and after being off birth control for about a year, i finally felt like things normalized a bit. now i feel like some of those bladder symptoms are creeping back, and it’s freaking me out. right after surgery it felt like things were actually improving, so i’m confused and honestly kind of scared.

i think i’m also just really down because i’m so happy they actually found the endo and removed it…but at the same time i feel kind of defeated. i know birth control is one of the main ways to help manage/prevent regrowth, but i feel like every time i try it, my body just doesn’t handle it well. it’s making me feel like i don’t really have a good option.

i’m just really stressed and don’t know if this is normal adjustment (since it’s surgery + IUD at the same time), or if my body is already telling me this isn’t a good fit again??

i also don’t know if removing it this early is dramatic, or if it’s valid given how i’m feeling WELP.

if anyone has been through something similar, i'd appreciate any and all thoughts!!

  • if you’re hormone-sensitive, did mirena ever level out for you or did it stay rough?
  • how long did you give it before deciding to keep/remove?
  • does the discharge sound normal post-insertion, or worth getting checked?

i’m just really worried and don’t want to ignore something if it’s not right.

thank you, thank you 🤍

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u/60019077 — 11 days ago