I already have a bunch of tattoos but I haven't got any since my diagnosis 5 months ago. I was wondering if anyone has any experience with it since I'm a bit scared to be in a lot of pain (more than usual of course) , get a seizure or so... Would love to get some info on that. My birthday is coming up and I'd love to get myself some new ink but maybe start with something small to test it out. Any tips on preparing myself for it?
I’m wondering if anyone with FND drives a car? Years ago I failed my exam so I would have to redo lessons etc. But honestly, it feels like it would be dangerous for me to drive so I’m not going to, but maybe that depends on what your symptoms are and if it get’s better overtime? But what if suddenly I would get a seizure, more brainfog or even paralysation? Would be great if I’d get some insights on this!
I got my diagnosis a month after starting to date my partner. We've been together for 6 months now and are very happy together. I've had a very rough childhood and adulthood trying to figure out life. I went to a psychiatric hospital for a half year with a lot of group therapy to work and understand myself. I had to go back home with my mother (who very likely has bipolar disorder as said by my therapists) which was not recommended because that is the source of my problems. I had to have a roof over my head. The last month there, I lived with her again after sleeping in the hospital for 5 months. I had a sudden back injury and 2 weeks later I started having my FND symptoms. I got my diagnosis on 10th december 2025. I was so eager to start working with a fresh mind and get out of that place as soon as I could, but I couldn't.
My partner (I'm a 26yr woman, he 28 male) lost his appartment and income and needed a place to stay so my mother was okay with him living here, also because he takes care of me all the time. Last week, a big bomb exploded and she wanted to put us on the streets out of the blue. Yes, also me and my wheelchair. Today, she gave us a rant again that he needs to leave this week and I should follow ASAP. We've been looking for emergency places (idk what the correct term is in English) to stay for weeks now because we don't feel good here at 'home' together with our social assistent but no luck yet. There is no way of talking to her on a normal level, she ignores whatever we say. Everyone is at fault except for her. She doesn't care. One moment, she seems very caring and the other she prefers to put me on the street. My health has been going backwards due to all the stress. For many years my body reacted very badly to stress and doctors kept telling me to avoid it. But now, the neurologists say the same and the difference of how my body reacts since having FND are immense. I'm so angry that my health is in the hands of other people who make life so much harder than it should. We're desperately looking for something and I have a cat too. I know she will take care of him (if she's not out partying with friends and leaving him alone for days) so it hurts me to have to leave him behind again just like when I was in the hospital.
Yet, besides all the stress, I feel some sort of relief that I have made a discision of never coming back when I leave because I have learned a lot. I have learned that I don't need to keep fighting to try and make up with her because there is just no way. She is unreasonable and she doesn't seem any problem or mistake doing and saying all the things she does. She doesn't deserve my energy. I hope so much that when we get out of here my body and brain will get better. Because of this, I've had days of hell with a lot of pain, more seizures, more brain fog, nightmares if I sleep but I barely can... My mental and physical state are getting worse and it's not fair.
So. This was my story I wanted to vent about. I'm also wondering if there are others who go through a lot of stress besides the illness and how you deal with it. If anyone has any tips of how to deal with this, I'll love to hear it. Thanks.
I was wondering if anyone tried alternative meds like CBD or even psychedelic or other natural substances. Is there anything in your experience that helped attacks or made things worse... I am aware that results can be different for everybody, just looking for information and experience.