u/24Lemons_

Hello again lovely people

So yesterday was DMT decision day and apparently my MS has decided to be… enthusiastic. Think Christmas tree levels of activity on MRI. Not the festive vibe I was going for, but here we are.

After a lot of back and forth, my team and I landed on Ocrevus… but the newer subcutaneous injection version rather than the IV infusion. I had fully emotionally committed to the whole drip, snacks, blanket, long-haul flight experience, and then plot twist, we pivoted.

I’m told the injection appointment is more of a 2 to 3 hour situation with checks and monitoring, which sounds almost suspiciously efficient.

So, I’m coming to those of you who’ve actually been there:

Has anyone had the Ocrevus injection?
What was it like on the day?
Any side effects or surprises?
Did it feel very different from the infusion, if you’ve had both?

I’m in that slightly wobbly headspace of “I think I made a good decision” immediately followed by “I have absolutely no idea what I’m doing.” I know I can switch DMTs if it doesn’t suit me, but still… big choices, big feelings.

Not entirely sure what I’m asking for here. Reassurance, real-life stories, a gentle “you’ll be fine”… all welcome.

Thanks from your mildly overwhelmed but hopeful MS newbie

Hello wise and wonderful over 60s

I come to you as a relatively new member of the club at age 50, still figuring out what’s what and trying not to Google myself into oblivion.

I had an interesting chat with my neurologist yesterday. She mentioned that as we get into our 60s and 70s, the immune system naturally chills out a bit and B cells tend to deplete with age. Because of that, she is generally not in favour of continuing DMTs past around 60.

I will admit, this threw me slightly. I had mentally signed up for decades of treatment and suddenly it sounded more like a limited time offer.

So I thought I’d ask those of you who are actually there and living it:

Have your neurologists discussed stopping your DMT?
Have any of you already stopped, and if so, how has that been?
Was it your decision, their recommendation, or a bit of both?

For context, my neurologist is very switched on, very reassuring, and not someone I doubt. She was also really positive about new treatments coming down the line, which helped. Still, it got me thinking.

Would love to hear your experiences, wisdom, and possibly your best “I’ve seen it all” takes.

Thanks in advance from your slightly startled junior member