Forgoing Treatment (Decitabine)
Hi, new to posting on reddit. I was diagnosed with very high risk mds in November 2025 and have been getting EPO shots for hemoglobin. All wbc and platelets are low. Wbc 320, platelets 50. The decitabine treatments sounds horrendous. I am 70 yrs old and I feel ok now but I was thinking about getting all my things in order and letting the disease take its course. I'm a veteran so I can get home health and then palliative/hospice care. Not really afraid to meet my maker I just don't want to suffer. I freaked out the cancer group I was in because nobody had mds and they had more opportunity for remission etc. If anyone has thought about this decision I would like some feedback. I'm in California but the death with dignity thing is definitely off the table. Thanks for taking the time to read this!