Severe ventriculomegaly causing pituitary compression?
Hi I've been dealing with ongoing scans and follow ups with my specialist for another issue.
Title was one of my MRI findings as my lateral and third ventricles are so enlarged they are affecting both my pituitary sella turcica region and the optic chiasm, but I have no clinical linkage yet for either description...
I recently had an endocrinology appt and a blood test battery which I think I'm still waiting on some results back for, but I was wondering what this is like? I don't want to over intellectualize in a space I really don't know enough about. But I was assuming something would match back to this finding hormonally? Sex hormones, prolactin and tsh (manager with Synthroid) are back in range.
Like I have hashimotos but that's auto immune and with what I got back so far it seems controlled despite how squished it is.
Most people with this condition seem to have surgery immediately and I've just adapted over the years without it?
Can anyone give me some context and reassurance in the meantime before my next appt or next results come back? Symptoms have been pretty heavy fatigue, brain fog and disorientation/balance and overall apathy and Synthroid has helped me a bit with energy levels at least ! Like at least I'm not bed ridden but recovery from exercise is pretty rough despite how hard I try to stay active